Making Sure Voices Matter: Advocating on the Hill for Disability Rights

On March 23 and 24, the Values Into Action team joined more than 900 self‑advocates, family members, and professionals in Washington, DC for the Disability Policy Seminar. At a time when many federal decisions feel uncertain, coming together to talk about disability policy felt more important than ever.

A key part of the seminar was visiting Capitol Hill to meet with elected officials. Members of our team took part in several meetings to share how important home and community‑based services are for people across New Jersey. These services help people live, work, and thrive in their own communities. With recent funding cuts creating concern, these conversations carried real urgency.

The first day of the seminar focused on learning and shared experiences. We heard from self‑advocates who spoke about their own journeys and how policy decisions affect their lives. Throughout the day, government staff shared information about programs many people rely on, including Medicaid, SNAP, and Social Security. One of the final sessions looked closely at today’s challenges and the risks of cutting disability funding, while also highlighting how advocacy can protect these vital supports.

During our meetings, we spoke with Senator Andy Kim about the need to protect and strengthen disability services. We shared our support for repealing harmful Medicaid provisions in H.R. 1, restoring funding through the Protecting Health Care and Lowering Costs Act of 2025, and making Home and Community‑Based Services (HCBS) a required service under Medicaid. These changes help ensure people can continue living in their communities with the support they need.

We also talked about education and the urgent need to fully fund IDEA, so students with disabilities receive the services they are promised. In addition, we advocated for ending harmful restraint and seclusion practices and for making sure colleges and universities provide clear, effective, and accessible accommodations.

Federal disability programs make it possible for people to live independent, self‑directed lives. They support access to education, jobs, stable housing, family support, and basic human rights. Being part of the Disability Policy Seminar reminded us how powerful it is to come together, share our voices, and advocate for a more inclusive future.